Abstracts

Adult Care/Transition

• Association between Depression and Alcohol Use among Young Individuals with Spina Bifida in Arkansas
• From Transition Challenges to Successes: Establishing a Spina Bifida Adult Care Clinic
• Health Risk Behaviors among Adolescents and Young Adults with Spina Bifida in Arkansas: A Population
• Life Course Health Patterns and Health Care Utilization among Adolescents and Adults with Spina Bifi
• Preliminary Effectiveness and Feasibility of an Intervention to Improve Participation in Work of You
• Prevention of Skin Breakdown as Teens Transition into Adulthood
• Risk Factors of Sudden Death in Young Adult Spina Bifida Patients
• Satisfaction with Transition to Adult Health Care: A Focus Group Experience with Adults and Parents
• Secondary Conditions in Adults with Spina Bifida
• Transition in Young Adults with Spina Bifida: A Qualitative Study
• Transition to Adult Health Care: Factors Related to the Perception of Health Competency in Young Adu

Posters

• Bright Futures Transition Camp: A Project to Promote Independence in Adolescents with Spinal Cord De
• Health Status, Health Care Utilization, and Health Information Sharing: Patterns of Adult Patients a
• Phase I: Development and Implementation of a Nurse-Led Health Care Transition Program for Youth with
• Preparing for Transition: Knowledge and Behavior Are Teens and Parents Saying the Same Thing?
• To Become Adult with Spina Bifida - Barriers and Opportunities
• Wound Care Nursing and Seating Clinician Collaboration Resolves Pressure Ulcers

Epidemiology/Genetics

• Beta Testing of a Spina Bifida Electronic Medical Record (EMR)
• H3K27me2 as Epigenetic Biomarker in Amniotic Fluid Stem Cells from Women with Neural Tube Defect Aff
• Inpatient Health Services for Children with Spina Bifida: Where It Is Delivered and Who Pays for It
• Report Functionality Tool: A Single Page Data Summary Screen for Reeal-time Data Validation
• Socio-demographic Characteristics and Outcomes in Spina Bifida Patients
• Spina Bifida Risk is Conferred by Multiple Polymorphisms in Folate One-Carbon Pathway Genes
• Use of Emergency Department Care by Families with Spina Bifida
• Weight Gain During Pregnancy and Neural Tube Defects in Offspring

Posters

• Modeling the Potential Public Health Impact of Prepregnancy Obesity on Spina Bifida and Other Fetal/
• National Spina Bifida Registry (NSBR): Development of a Data Management and Quality Control System
• Variability in the Data Collection Methods among the SB Clinics Participating in the National Spina

Neuropsychology/Learning

• Activity Assessment of Adults with Spina Bifida: Comparison of Occupational Therapy Assessment Instr
• Attention in Spina Bifida: Findings from the SANDI Project
• Longitudinal Investigation of Executive Function During the Transition to Young Adulthood in Spina B
• Longitudinal Predictors of Mathematics and Reading in Children with Spina Bifida
• Neuroimaging in Spina Bifida: Findings from the SANDI Project
• The Kennedy Independence Skills Spina Bifida Version: Introducing a Web-based Measure of Adaptive Se
• The Spina Bifida Dashboard: An Online Neuropsychological Battery of Clinical Monitoring and Diagnosi
• Volumetric Analysis of Math Networks in Spina Bifida

Posters

• Initial Validation of the Kennedy Independence Scales: A Measure of Self-care Initiation in Spina Bi

Neurosurgery/Neuroscience

• A World of Opportunity: Disparities in Spina Bifida Care and Neurosurgical Evidence-Based Global Hea
• Classical Neurosurgical Technique to Correct Fetal Spina Bifida: For the Better or Worse?
• Complications Following Tethered Cord Surgery in Spina Bifida Patients
• Early Reconstruction, Instrumentation and Fusion of an Anterior Thoracic Meningocele via Trans-Thora
• Evaluating Representation of MOMS Results: a Retrospective Single Institution Study
• Knowledge Levels of Staff, Parents and Adolescents with Spina Bifida Regarding Tethered Cord, Shunt
• Myelomeningocele: Comparison of Urologic, Orthopedic, and Neurologic Outcomes in those with and with
• Plantar Pressures and Observational Video: Potential Use in Tethered Cord
• Selective Ventriculoperitoneal Shunt Placement in Myelomeningocele: If It is Good for the Brain is i
• Shunt Insufficiency is Valid Concept in Managing Hydrocephalus in Myelomeningocele
• The Reference Pressure Controversy in the Marmarou Model
• Transitional Care in Neurosurgery: Follow up from a 12 Month Experience

Orthopedics

• An Evaluation of the Relationship Between Tibial Torsion and Coronal Plane (Varus/Valgus) Knee Momen
• Comparing Mobility Outcomes of the MOMS to a Single Institutional Experience
• Correlation Between Ventriculoperitoneal Shunt Complications and Functional Gait Quality in Pediatri
• Factors Associated with Ambulatory Status in Children with Myelomeningocele
• Incidence of Chief Complaints and Retethering in Children with Lipomeningocele and Myelomeningocele
• Kyphectomy Correction in Children with Myelomeningocele
• Longitudinal Temporal-spatial Gait Assessments of Myelomeningocele Patients: Does BMI Affect Long-te
• Outcomes of Tibial Prevalence of Musculoskeletal Sequelae of LipomyelomeningoceleDerotational Osteotomies Performed in Patients with Myelodysplasia
• Relationship Between Walking and Bone Mass in Ambulatory Children with Myelomeningocele
• Spinal Deformity Correction in Conjunction with Tethered Cord Release
• The Effect of a Triple Muscle Transfer, Varus Derotational Femoral Osteotomy, and Acetabular Osteoto
• The Impact of Tibial Torsion and AFOs on Transverse Plane Knee Motion in Children with Lumbrosacral

Posters

• Correction of Congenital Vertical Talus Using the Dobbs Method in a Patient with Myelomeningocele: A
• Upper Limb Pain and Injury in Adults with Association between Depression and Alcohol Use among Young Individuals with Spina Bifida in ArkansasSpina Bifida 

Physical Activity/Participation/Health Promotion

• A Systematic Review of the Relationship Between Acculturation and Diet among Latinos in the United S
• Exercise Capacity in Adults with Spina Bifida
• Exercise Testing in Ambulatory Children with Spina Bifida (SB)
• Group Visits to Promote Physical Activity and Sports Participation for Children with Spina Bifida an
• Measuring Body Composition in Children with Spina Bifida: A Pilot Study
• Moving Generations: Maximizing Learning & Health Through Innovative Physical Activities
• Positive Influence of a Community Sports Program for Spina Bifida Children on Affected Families and
• Spina Bifida: Body Composition and BMI
• Treadmill Training in Ambulatory Children with Spina Bifida
• Vitamin D Deficiency in Children with Spina Bifida
• WeeBot: Robotic-Assisted Mobility for Young Children with Myelomeningocele?

Posters

• Measuring Body Composition in Children with Spina Bifida: A Pilot Study
• Overweight and Obesity Among Children and Youth with Spina Bifida: A Retrospective Medical Records R
• Steps to Develop an Effective Physical Activity Health Promotion Program for Adults with Spina Bifid
• Variations in Anthropometric Measurement Practices among Spina Bifida Clinics Participating in the N

Psychosocial and Quality of Life Outcomes

• Bowel Management for Neurogenic Fecal Incontinence
• Change in Mobility in a Post-Pubertal Cohort with Spina Bifida
• Children with Spina Bifida in Mongolia
• Comparison of Swedish and American Children with Myelomeningocele: Does the Type of Health Care Syst
• Developing a Modified Quality of Life Questionnaire for Children with Spina Bifida
• Development of a Fecal Incontinence and Constipation Quality of Life Measure in Adolescents with Spi
• Lower Body Skin Inspection to Determine the Incidence of Pressure Ulcers in Individuals with Spina B
• Management of the Neurogenic Bowel in People with Spina Bifida: Best Practice Model
• Parenting Distress and Parenting Characteristics of Caregivers of Children with Spina Bifida
• Perspectives on Urinary Continence in Youth with Spina Bifida
• Presence of VP Shunt has Greatest Impact on Quality of Life in Spina Bifida Patients of All Ethnic B
• Unlocking Potential - The GOALS Approach
• Using the Life Course Model to Drive a Science Agenda for Spina Bifida
• A Team Approach to Independence and Quality of Life for Individuals with Spina Bifida

Posters

• A Teen Camp for Adolescents with Spina Bifida Evolves from Increasing Social Support to Medical Self
• BLING: A Self Esteem Camp for Tween and Teen Girls with Spina Bifida
• Children’s Hospital Los Angeles Spina Bifida Patient Registry
• Depression Among Children and Adolescents with Myelomeningocele: Are We Asking the Right Person the
• Effectiveness of Inpatient Hospital Stays for Self-Catheterization Independence for Children with Sp
• Holland Bloorview Kids Rehabilitation Hospitals (HBKRH) Spina Bifida Clinic: A Program Redesign Pro
• How Family Variable Influence Developmental Competencies in Adolescents and Young Adults (AYA) with
• Improvement of Communication and Coordination in the Spina Bifida Program at Childrens Hospital of
• Improving Access to Patient and Family Centered Spina Bifida Care with a Multidisciplinary Group Med
• Mothers Expectations of Developmental Milestones in Children with Spina Bifida
• Outcomes of Caregivers of Youth with Spinal Cord Dysfunction
• Parent Satisfaction with Bowel/Bladder Programs to Achieve Continence in their Child with Spina Bifi
• Satisfaction after Bowel and Bladder Reconstructive Surgery for Continence in the Pediatric Spina Bi
• The Role of Ethnicity & Culture on Functional Status in Children with Spina Bifida
• The Role of Outpatient Spina Bifida Clinics Nurse Coordinator in the Prenatal Evaluation for Myelom

Urology

• Achieving Anal Pseudo-continence by Colonic Irrigations in Patients with Spina Bifida
• Cecostomy Button with Concomitant Lower Urinary Tract Reconstruction for Continent Enema
• Characteristics and Survival of Persons with Spina Bifida (SB) and End Stage Renal Disease (ESRD) us
• Chronic Kidney Disease in Children with Spina Bifida: An Under-recognized Co-morbidity
• Comparison of Open and Robot-assisted Appendicovesicostomy, Bladder Neck Reconstruction, and Bladder
• Continence Management in Children and Young Adults with Spinal Cord Lesion in Developing Countries
• Cost Savings from not Catheterizing Newborns with Spina Bifida
• Cystatin C as an Adjunct Marker in the Early Detection of Renal Insufficiency in Pediatric Patients
• Dextranomer Endoscopic Injections For The Treatment Of Urinary Incontinence In Patients With Neuropa
• Distribution, Care and Management of Spina Bifida in Kenya
• Durability of Continence Analysis in Children with Neurogenic Bladder Undergoing Sling Without Augme
• Early Initiation of CIC does not Prevent Renal Scarring in Patients with Neurogenic Bladder and a Hi
• Endoscopic Injection of Submucosal Bulking Agents for the Management of Incontinent Catheterizable C
• In-Utero Repair of Myelomeningocele Does Not Improve Lower Urinary Tract Function
• Long-Term Follow-Up of Incontinent Upper Tract Urinary Diversions (UD) in Spina Bifida Patients
• Outcome of the Lima Peri-urethral Constrictor in Children and Adolescents with Congenital Neuropathi
• Pediatric Augmentation Cystoplasty: A Single Institution Contemporary Experience
• Pediatric Robotic Assisted Laparoscopic Lower Urinary Tract Reconstruction: Initial Experience and P
• Perineal Surgery for Faecal Continence
• Refinement of Continence Questions for the National Spina Bifida Registry
• Urinary Continence in Young Adults: Perceptions, Reality, and Limitations
• Urodynamic-based Selective Management in Children with Myelodysplasia from Birth to Age 3 Years
• Variability in Bowel and Bladder Incontinence Across US Spina Bifida Programs

Posters

• Antibiotic Delivery Systems Derived from Silk Fibroin for Mitigation of Uropathogenic Bacterial Infe
• Co-transplantation of Donor Matched Spina Bifida Derived Mesenchymal Stem Cells with CD34+ Hematopoi
• Embryonic and Induced Pluripotent Stem Cells for Bladder Tissue Engineering
• Inosine Improves Bladder Function in Rats With Spinal Cord Injury
• Is Intravesical Botox Effective for Neurogenic Incontinence in Children with Spina Bifida?
• Medical and Surgical Management of Adult Patients with Spina Bifida
• Percutaneous Nephrolithotomy is Safe and Effective in Children with Both Myelomeningocele and Scolio
• Reinnervation of the Urethral and Anal Sphincters by Transfer of Femoral Nerve Branches to Pudendal